Wednesday, April 20, 2011

11 years

11 years ago this month I was dianogsised with Lupus. When I first got diagnosised I thought Lupus would never run my life. I was going to be stronger than it. I was going to beat it.

Well in 11 years I have learned a lot...

I have learned to listen to my body and I have learned that I cannot ignore my Lupus. The last year has been the hardest. I have had to really listen to my body, I have had to stop things I love to do and I have tried all kinds of new medications... the latest one has sent my body into a major flare. I hurt from head to toe. It is getting better, but slowly.

I kept reminding myself that I one of the lucky ones. But I'm starting to think i'm not. Sure my lupus isn't attaking my kidneys, but it is attacking my joints and my lungs it makes me exhausted and gives me headaches... maybe nobody has a good strain of Lupus. It's time for me to open my eyes and start realizing what is going no and start living my life.


Sistergirl said...

Lets be positive. What are you going to do first?

patty said...

I just found your site, and honestly it scares me. I was diagnosed two months ago with Lupus. I do not want it to control my life, and am working on controlling it. However, the more I read the more I worry that it will never be under control. Thanks for posting how you feel and what is going on....I need to be prepared, I guess!

Cori Lewis said...

Hang in there!!!!
Email me if you want to talk.

Keep positive. I have fought this for 11 years and I am going to continue to fight it. Sometimes I feel overwhelmed. But I am learning to listen to my body.