Thursday, November 13, 2008

Wick Davis, who rights the Lupus Foundations blog asked that I post this on my blog & I am happy to participate...


50 Years Without a New Lupus Drug! What Does it Mean to You?
Share your stories with Congress and Encourage Researchers to Keep Up Their Effort


Thursday, November 20, 2008 will mark an unfortunate anniversary. On that date, it will be 50 years since the U.S. Food and Drug Administration (FDA) last approved a drug specifically to treat lupus.

A half century is a long time to be waiting for safer and more effective treatments for a disease that affects an estimated 1.5 million Americans and at least five million people worldwide.

We need to let Members of Congress know that they must provide more funds to conduct the basic research that pharmaceutical and biotechnology companies need to develop new treatments for lupus. At the same time, we want to express our collective gratitude to the hundreds of researchers and industry executives who have been working tirelessly for many years to bring scientific discoveries from the bench to the bedside.

So what does 50 years without a new lupus drug mean to you?


No one is more qualified to speak out about the need for better treatments than individuals with lupus who have no option but to keep using the old drugs that were approved for lupus when Dwight Eisenhower was still president and can have side effects worse than the primary disease.

How can you help? Share your story!

Please help by sending a two part email message to 50years@lupus.org as soon as possible but before November 20.

In the first part of the email, write a short message (about 150 words) that explains to Members of Congress what 50 years without a new lupus drug means to you. In the second part of the email, write a short note of appreciation that explains to researchers and industry executives how grateful you are for their efforts to develop new safe and effective treatments for lupus.

Please include your first and last name and your city and state in your email. If possible (but certainly not required), please also attach to your email a clear photo of yourself so we can personalize your message.

We will use your email message in several ways to help advance the science of lupus!


Deliver your message to Congress.
During the LFA’s Annual Advocacy Day, lupus advocates will deliver your story, and the stories of others, to policy makers in Washington, DC. Be sure to include your name and your city and state in your message so we can deliver your story to your Representative.

Feature selected stories on the LFA website. While we are not able to promise that we can post every message and photo we receive, we will review each one and post as many as possible to our website and in our blog so the public also can learn about the impact of 50 years with no new drug has on people with lupus and their families.

Share your "Thank You" notes with Researchers and Industry Executives.
Today there are hundreds of dedicated researchers and executives from pioneering biotechnology and pharmaceutical companies working hard to advance the science of lupus and to conduct clinical studies of nearly 30 potential new treatments for lupus. We want these individuals to know how much you appreciate their continued focus on lupus.

We Need Your Help Now! Act Today!

Send your message and photo today (or by November 20) to 50years@lupus.org. Then, on Thursday, November 20, visit our website to read the messages and learn how the LFA is taking steps to address this urgent problem.

Ask Others To Get Involved!

Please share this request with others who also have been waiting as long as five decades for a new lupus treatment! Together, we can raise awareness of this issue and urge our elected leaders to provide increased funds for research to find ways to develop safer and more effective targeted therapies for lupus.

8 comments:

Disability Blogger said...

That's incredible. 50 years? In 1939, we didn't have radar, jets, synthetic fuel, or atomic energy. In 1945, we had them all. That shows what defined goals will get you, which must be lacking in this case.

Anonymous said...
This comment has been removed by a blog administrator.
Anonymous said...

I wish not concur on it. I assume nice post. Specially the title-deed attracted me to review the intact story.

Anonymous said...

Amiable fill someone in on and this fill someone in on helped me alot in my college assignement. Thank you on your information.

Anonymous said...

[color=red]The Most Affordable XRUMER/BACKLINK SERVICE Online!
The EFFORTLESS and POWERFUL WAY TO BUILD MASSIVE # OF BACKLINKS
[color=black]
200,000 BLASTS of your URLs+ Anchor Tex, message, pictures (can be spinned) etc
$10 USD (shared with other clients like a carpool), or
$25/200k for exclusive!(you control EVERYTHING)
$50 Exclusive @ 500,000 blasts.
(Complete reports will be given to clients)

[IMG]http://img697.imageshack.us/img697/1540/arrowdownh.gif[/IMG]
For orders, questions or concerns? Email: [u]formless.void47 at gmail.com [/u]
Note:
1. For STRICT Whitehat sites, it is advised to create buffers to pass on linkjuice. i.e. social bookmarks, cloaked pages etc.
You can blast the site directly, but it entails risk.
Using buffers are 100% safe, speaking from experience.
2. Xrumer is a very technical tool. Just describe to me what sorts of effects you want and well make it happen!
If you want to buy Xrumer?
>>>>> http://cloakedlink.com/chzgykebsd <<<<<<

[color=black]
-------
CLIENT 2 SAMPLE SPACE FILLED WITH URLs,Pics and Keywords
affordable seo firm seo services chennai seo reporting tools text link seo india seo solihull internet marketing seo banner exchange seo japan seo school landing page seo pack one seo bruceclay link broker seo copy new jersey seo seo company ireland seattle seo Buy Pr4 Link seo management services seo vacancies seo altrincham seo questionnaire seo consultant delhi backlink seo optimization software search engine optimization techniques seo advice exchange link increase traffic seo keyword analysis Xrumer Review seo techniques seo italy chicago seo los angeles seo company affordable seo company xrumer 4 crack seo company bangalore seo blog india seo analysis linking seo germany seo cambridge chicago seo company seo trends seo check top 10 seo tips seo optimization expert seo specialist london

-----
CLIENT 3 SAMPLE SPACE
[url=http://provenheightincrease.co.cc/ebook/height-increasement-pills]height increasement pills[/url] http://provenheightincrease.co.cc/ebook/height-increasement-pills

[url=http://herpescures.co.cc/drugs/Herpes-And-Infertility-Pictures-Of-Herpes-Outbreak-Gential-Herpes-Women.html]herpes and infertility pictures of herpes outbreak gential herpes women[/url]

http://buyrahiabudsreviews1.onsugar.com/6473535 Buy Ahia Skyscraper Bud reviews Buy Bahli Bubble Bud reviews

[url=http://buyplasmahdtvrev.blogetery.com/2009/12/11/panasonic-tc-p65v10-65-plasma-tv-widescreen-1080p-fullhd-hdtv/]PanasonicTCP65V10-65"plasmaTV-widescreen-1080p(FullHD)-HDTV[/url]


-----
CLIENT 4 SAMPLE SPACE
[url=http://provenheightincrease.co.cc/ebook/grow-taller-pills]grow taller pills[/url] http://provenheightincrease.co.cc/ebook/grow-taller-pills

[url=http://growyourdick.co.cc/penile/impotence-advice]impotence advice[/url] http://growyourdick.co.cc/penile/impotence-advice

http://weedvaporizer-volcanovaporizer.info/hookah/portable/air/vapor.php?v=c3VcR

http://buycheapplasmatv.info/cgi-bin/index.pl?=thinnest-plasma-tv [url=http://buycheapplasmatv.info/cgi-bin/index.pl?=thinnest-plasma-tv]thinnest plasma tv[/url]

[url=http://teethwhiteningstripsreviews.info/xr/colgate-teeth-whitening-strips]Senneterre hamilton teeth whitening tooth whiteners tooth whitening paint cost of teeth laser whitening Tucson ebay Indianapolis tooth whitening melbourne tooth whitenin[/url]

-----
CLIENT 5 SAMPLE SPACE
[url=http://cheapxrumerservice.co.cc]Cheap Xrumer Service[/url]
[url=http://cheapxrumerservice.co.cc]Cheapest Xrumer Service[/url]
[url=http://cheapxrumerservice.co.cc]Best Xrumer Service[/url]
--------
http://pleodinosaurforsale1.wordpress.com/feed/

http://cheaphdtvplasma.co.cc/television/pioneer-plasma-screen [url=http://cheaphdtvplasma.co.cc/television/pioneer-plasma-screen]pioneer plasma screen[/url]

[url=http://stopacaiberryscams.info/cgi-bin/index.pl/acai-extreme-weight-loss]acai extreme weight loss[/url]

Anonymous said...

[url=http://kfarbair.com][img]http://www.kfarbair.com/_images/_photos/photo_big8.jpg[/img][/url]

בית מלון [url=http://www.kfarbair.com]כפר בעיר[/url] - אווירה כפרית, [url=http://www.kfarbair.com/about.html]חדרים[/url] מרווחים, שירות חדרים, אינטימיות, שלווה, [url=http://kfarbair.com/services.html]שקט[/url] . אנחנו מציעים שירותי אירוח מגוונים גם ישנו במקום שירות חדרים הכולל [url=http://www.kfarbair.com/eng/index.html]סעודות רומנטיות[/url] במחירים מיוחדים אשר יוגשו ישירות לחדרכם!

לפרטים נא גשו לעמוד המלון - [url=http://kfarbair.com]כפר בעיר[/url] [url=http://www.kfarbair.com/contact.html][img]http://www.kfarbair.com/_images/apixel.gif[/img][/url]

wahab said...
This comment has been removed by the author.
abdul said...

Get that perfect smile in your face on your wedding day. Enhance that aura on your face and include yourself in your wedding preparation.
teeth whitening London