Wednesday, May 4, 2011

Week 6

I am 6 weeks in from my first infusion. Yes I am counting the weeks. Just 2 more til I know if it works for sure or not. Part of me knows that the 8 week window is not set in stone... but I'm still waiting.

Each time I realize something good I wonder "is it working?". Things are pretty much the same. I am exhausted, which is normal. And my monthly flare came as expected. So I am waiting and it's making me nuts.

May is Lupus awareness month. I am doing all I can to raise awareness. I get so frustrated that in October all I hear and see is pink. I wish May was like that for Lupus. (BTW- not complaining about BC awareness).

2 comments:

BD said...

New here but just wanted to stop in and wish you luck with your infusion. I hope it works out for you so you can get some relief! -BD

jennifer said...

Hang in there you're closer than you were.