Friday, April 24, 2009

So it's been a while...

Are you surprised?
I haven't really wanted to update this blog, for a couple for reasons. First, I'm tired of the same old stuff and writing it all down just reminds me of that stuff. And two, does anyone really read this blog? I found out the other day that at least one person does because they emailed me asking me if I was doing better. Bottom line, I'm the same.

One of the things I did do differently was I went to my primary care physican after having a whole day of pain in my lymph nodes being so bad my right arm was useless. He sent me in for a mammogram in hopes of looking at the tissue, muscle & lymph nodes all at one. That was two weeks ago and I still haven't heard from him. So I wait. I'm going through another bit of no sleep. I finally got a rx for a sleeping pill, but it has yet to work. I see my doctor next friday and I hope to get some answers.

The pill I started finally kicked in and from an antidepressent stand point it is the best drug I've ever had. but as far as pain management I could take it or leave it. I don't want to go back on the other cause I need/want to loose weight.

I hope this is a good update. Once I figure out Twitter I'm going to start posting an update every day, if not more, so you can follow me there. Also I'm on facebook and that is probably the best place to find me :-).

Here is a little joke I put on facebook a little while back.

Ok, for the last several months I have been annoyed and struggling with everything I have dealt with and when a doctor says "Sorry you have Lupus, I can't help you" it is the most annoying thing you can hear. So lately I've realized, I can blame so many things on Lupus.
(Please note, some of these are true, but some are mostly for my own amusement. I don't plan on affending, but, you never know).

--have chest pain? it's not a heart attack... it's Lupus
-- 4 hours in the ER, finally the doctor comes in. barely looks your way and doesn't even touch you... he's response " You have Lupus and Fibromaylgia, I don't know why your here, there is nothing I can do for you".
-- I've known you for years and I've forgotten your name.... sorry it's Lupus
-- Stubbed my toe and yelled out a bad word- that's definatly Lupus
-- Eye doctor says the viens in my eyes are very abnormal... oh wait she just notice you have Lupus!
-- Can't eat much cause anything can set off some nasty GI stuff- that is DEFINATLY lupus
-- Gained 50 pounds in 2 months? It's not what your eating it's the meds
-- Your friends think you are crazy- that's the meds- from Lupus
-- can't get your words out of your head and your speaking in a large group? oh pardon me have an incurrable disease that causes me to be on crappy drugs that make me dumb... it's LUPUS
-- did I call you a bad name? I'm sorry I have Lupus
-- Did I forget I borrowed $10.00? eerrr no really that's lupus
-- laughing uncontrolably at something really dumb? Sorry I have lupus and I'm hoping laughter will heal it.
-- did I burst into tears after laughing? That's the steriods that make me crazy emotional.
--Did I just smack you for no reason? Sorry Lupus causes uncontroable muscle spasms.
--It's 5:00 and I'm in my PJ's resting in bed- yup you guessed it Lupus
-- You heard me snoring? at my desk? are you sure? well, then sorry I have lupus and it can cause me to fall asleep unknowingly... and the fact that I'm curled up on the floor only means I fell out of my chair... I didn't curl up there in hopes of not being caught.
-- Oh that's not a candy jar on my desk, it's my pill box, hands off. Those happy pills are for me. DUH.

I hope to come up with more... more funny ones. I hope someone found this funny, if it's not funny to you sorry, my humor is really bad cause of all the meds I'm on from Lupus.


grandmarockton said...

IT'S the truth but you have to live it to know, but at least it not CRAZY as I feel sometimes!

Amy said...

I find your joke wonderfully funny (and really honest)! I have two doctors who regularly refer me to my rheumy because they believe whatever's wrong at any given time is somehow tied to the lupus. The rheumy nicely informs me when I call him that not everything is because of the lupus and sometimes (he says sarcastically) that I feel bad because I'm sick not because I have Lupus. Sorry, I say, because I thought having Lupus made me sick. My mistake! It's comforting to know that I'm not the only one running around in circles with doctors and symptoms. It's nice to know that I'm not alone because I feel that way. Keep up the good work!

Margie said...

Thanks for posting this. I have been to the ER several times and every doctor who sees me (without examining me) always say it's lupus. Sometimes I feel like Dr. Jekyl and Mr. Hyde with the mood swings. Glad to see that I am not alone. Again, thank you for making me smile on a not so good day.

Anonymous said...

OMG! I am laughing my butt off! Which is good because i'm having a terrible a terrible flair... did i just repeat myself? Oh, it's the crazy meds i take for, yup, you guessed it, lupus! keep it up and stay well. Mary Beth

Erin said...

I loved your anallegies... but the sad thing is that they are soo true.