I am posting this from my phone while camping, so be kind and pantient with typos.
I am frustrated...... I don't know how to get my friends to realize that I'm sick. They know I have Lupus but they seem to forget.
Right now I'm camping with a large group of friends and when I say I need to go to bed early or take a nap they want to know why and they are annoyed- or at least that is how I take it. Maybe I'm taking it wrong? I don't know. And it's not everyone. Sometimes it's the ones really close to me. I don't want to say " my chest hurts" or "I'm tired because of lupus". I don't want to draw attention to the fact that I need extra care. How do I tell them that so they will hear me?
So I am going to put together my own Lupus site. So many people ask what's going on and I'm not sure how much they really want to know... so I am going to keep everyone posted here. I hope that other "Lupies" will find my site and post comments on how they have done things to survive.
Saturday, June 5, 2010
Friends
I am posting this from my phone while camping, so be kind and pantient with typos.
I am frustrated...... I don't know how to get my friends to realize that I'm sick. They know I have Lupus but they seem to forget.
Right now I'm camping with a large group of friends and when I say I need to go to bed early or take a nap they want to know why and they are annoyed- or at least that is how I take it. Maybe I'm taking it wrong? I don't know. And it's not everyone. Sometimes it's the ones really close to me. I don't want to say " my chest hurts" or "I'm tired because of lupus". I don't want to draw attention to the fact that I need extra care. How do I tell them that so they will hear me?
I am frustrated...... I don't know how to get my friends to realize that I'm sick. They know I have Lupus but they seem to forget.
Right now I'm camping with a large group of friends and when I say I need to go to bed early or take a nap they want to know why and they are annoyed- or at least that is how I take it. Maybe I'm taking it wrong? I don't know. And it's not everyone. Sometimes it's the ones really close to me. I don't want to say " my chest hurts" or "I'm tired because of lupus". I don't want to draw attention to the fact that I need extra care. How do I tell them that so they will hear me?
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